Cystic Fibrosis in Europe - remote measurement of outcome
نویسندگان
چکیده
Background Cystic Fibrosis (CF) occurs randomly in children across all European social strata providing an opportunity to sample their underpinning health care provision for this rare disease in an unbiased manner. We developed a 35 country European cystic fibrosis (CF) demographic registry to compare CF outcomes through an FP6 programme of the EU called EuroCareCF (http://www. eurocarecf.eu).
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عنوان ژورنال:
دوره 5 شماره
صفحات -
تاریخ انتشار 2010